Motor Neurone Disease

Motor Neurone Disease Association

Contact: President, Helen Gates Ph: (02) 6621 4018
A health and disability support and social group for people with motor neurone disease and for their families. This group is not focussed on fundraising but rather on social supportiveness and information exchange.

Meetings are held at in the tearoom at The House With No Steps in Alstonville at 11am on the 3rd Sat of every 2nd month beginning with February (February, April, June, August, October, and December) .

There are also support groups on the Gold Coast and at Coffs Harbour.

This group is affiliated with the NSW Motor Neurone Disease Association based at Concord Repat Hospital in Sydney.

Freecall: 1800 640 144

Visit the very informative website of the MNDA.

An outreach worker from the MNDA does home visits in this area once a year.
Contact: Christina Jason 02 9520 4492

This organization can also help with special equipment which may be difficut to obtain in the Northern Rivers area. Patients need to be assessed by an occupational therapist before the equipment such as 'Lightwriters' for people who can not speak, is sent from Sydney. Patients are only required to pay for return freight when the items are no longer needed.